special needs life

It’s Been Rough…..But Healing has Come

cj recovering

It’s been several weeks since I’ve been able to update here on Fine Natural Hair and Faith. The year started off with a bang. Actually, there’s been quite a few challenges occuring since about 2015.

For those who may be just dropping by or have just not been following the blog long, I’ll give you a brief overview of my world.

I’m a special needs mom. My son, fondly known as CJ is diagnosed with multiple disabilities and as a result, he’s had a number of medical issues including neuromuscular scoliosis due to cerebral palsy. His scoliosis had gotten so bad, his spine was curved to 85%. Here’s a pic of what it looked like before (right lung being crushed by his spine) and what it looks like now that it’s been straightened and secured with rods and pins.

spinal xrays

Because of CJ’s severe curvature of the spine, he required a spinal fusion, a surgery that fuses his spine to metal rods and pins. The surgery was a success but now we are dealing with the after care which takes up most of my attention. Hence, the reason I’ve not had any time to update the blog.

Spinal fusion is a very serious surgery and it takes about a year to fully heal afterward. CJ had the surgery on January 29th, 2018. There was some challenges (lung collapse, transfusion required, blood gas levels too high) but through it all God was with us and He honored His word, continues to honor His word. CJ is recovering.

We did have a bit of a set back which has also kept me from blogging…..His wound opened some and there appears to be some symptoms of infection, although the tissue of the skin actually looks healthy and there’s no fever. He’s on antibiotics and it appears to be changing things but as of the writing of this post, we are making plans to go back to the surgeon. CJ had his surgery at Shriner’s Hospitals for Children in Philadelphia. We live in NY.

Why did I go so far? Because I wanted the best and Shriner’s is the best at what they do. Best orthopaedic surgeons hands down. I’d travel to another country (assuing I could afford to), to get the best for CJ. It just so happens that Shriner’s Hospitals for Children is not all that far. It takes us a little over two hours to drive there.

On another note, I’m so very thankful for nurses who are now managing CJ’s after care. If you are a nurse and you’re reading this, please know that you are INVALUABLE. The work you do is priceless. Not everyone may recognize or even acknowledge it but as far as I’m concerned, you all make life so much easier.

CJ has two nurses that cover him 7 days a week. I’m working from home until they are set with his schedule but right out of the gate, they have been so helpful at relieving some of the stress that comes with caring for a special needs child.

In spite of all of the challenges CJ’s had from before surgery to after surgery, he remains a very happy and agreeable child. Even his nurses find him to be a very easy patient πŸ™‚

So, going forward while I’d love to continue blogging multiple times per week (and yes I still have lots to share), I’m going to cut it down to once per week. The good news is what I do share on a weekly basis will be of much more substance than when I’m writing posts three times a week. I’ll be able devote the time and attention needed to share on a single topic, in a comprehensive way.

Stay tuned for next week’s post where I’ll be sharing the herbal hair oils I’ve been using to maintain strong natural hair.

Michelle Smith
Michelle is a Christian special needs mom residing in the NYC area who shares useful tips to grow and maintain fine natural hair. She's a published author and Creator of Fine Natural Hair and Faith, inspiring others with faith for living along side knowledge on how to care for their "crown."

25 Comment

  1. I don’t know how you do it. But you do. My struggles pales in comparison to your battles and all with a smile. I see the battles you are winning, and demons you are slaying… Carry on warrior.

  2. U GO GIRL!! Your faith is awesome! Through it all, continue to take & make time for yourself because all-in-all,
    GOD definitely has your back. Sending much love and prayers for you and your.family.

    1. Amen! God is answering prayers too. When we went to the dr., he said the incision actually looks pretty good. What we thought was an opening in the skin is actually granulation tissue. We just have to be diligent cleaning it and treating it as well as him taking his antibiotics.

  3. Dearest Michelle
    Although I have taken a break from watching all Natural Hair YouTube videos I do think of you and CJ so thanks for your update.

    I continue to trust in The Most High that He will not give you more than you can bear and you, CJ and your family are in His more than capable hands. May The Most High strengthen and keep you all in the name that is above all names Yashaya our Christ and Saviour.


    1. Hi Rosie-

      Thank you for your prayers. I too have taken a bit of time from YouTube. I really do need to get back to it though. It’s actually a good distraction. I am planning to start recording again this weekend.

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