It’s been several weeks since I’ve been able to update here on Fine Natural Hair and Faith. The year started off with a bang. Actually, there’s been quite a few challenges occuring since about 2015.
For those who may be just dropping by or have just not been following the blog long, I’ll give you a brief overview of my world.
I’m a special needs mom. My son, fondly known as CJ is diagnosed with multiple disabilities and as a result, he’s had a number of medical issues including neuromuscular scoliosis due to cerebral palsy. His scoliosis had gotten so bad, his spine was curved to 85%. Here’s a pic of what it looked like before (right lung being crushed by his spine) and what it looks like now that it’s been straightened and secured with rods and pins.
Because of CJ’s severe curvature of the spine, he required a spinal fusion, a surgery that fuses his spine to metal rods and pins. The surgery was a success but now we are dealing with the after care which takes up most of my attention. Hence, the reason I’ve not had any time to update the blog.
Spinal fusion is a very serious surgery and it takes about a year to fully heal afterward. CJ had the surgery on January 29th, 2018. There was some challenges (lung collapse, transfusion required, blood gas levels too high) but through it all God was with us and He honored His word, continues to honor His word. CJ is recovering.
We did have a bit of a set back which has also kept me from blogging…..His wound opened some and there appears to be some symptoms of infection, although the tissue of the skin actually looks healthy and there’s no fever. He’s on antibiotics and it appears to be changing things but as of the writing of this post, we are making plans to go back to the surgeon. CJ had his surgery at Shriner’s Hospitals for Children in Philadelphia. We live in NY.
Why did I go so far? Because I wanted the best and Shriner’s is the best at what they do. Best orthopaedic surgeons hands down. I’d travel to another country (assuing I could afford to), to get the best for CJ. It just so happens that Shriner’s Hospitals for Children is not all that far. It takes us a little over two hours to drive there.
On another note, I’m so very thankful for nurses who are now managing CJ’s after care. If you are a nurse and you’re reading this, please know that you are INVALUABLE. The work you do is priceless. Not everyone may recognize or even acknowledge it but as far as I’m concerned, you all make life so much easier.
CJ has two nurses that cover him 7 days a week. I’m working from home until they are set with his schedule but right out of the gate, they have been so helpful at relieving some of the stress that comes with caring for a special needs child.
In spite of all of the challenges CJ’s had from before surgery to after surgery, he remains a very happy and agreeable child. Even his nurses find him to be a very easy patient 🙂
So, going forward while I’d love to continue blogging multiple times per week (and yes I still have lots to share), I’m going to cut it down to once per week. The good news is what I do share on a weekly basis will be of much more substance than when I’m writing posts three times a week. I’ll be able devote the time and attention needed to share on a single topic, in a comprehensive way.
Stay tuned for next week’s post where I’ll be sharing the herbal hair oils I’ve been using to maintain strong natural hair.